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Information-Seeking Behaviours of CALD Women with Endometriosis in Australia: A Qualitative Study.

Endometriosis affects one in seven women in Australia and is a significant public health concern. Access to appropriate health information is essential for informed decision-making and quality of life, especially …

Published: Jan. 22, 2026, midnight
"I don't feel like me anymore": A large-scale qualitative study exploring body image disruption in endometriosis and adenomyosis.

This study explored the lived experiences of body image among individuals with a diagnosis or suspected diagnosis of endometriosis and/or adenomyosis. Using an online qualitative survey (n = 287) and …

Published: Jan. 14, 2026, midnight
Experiences of women with endometriosis & their partners in India: Findings from a qualitative study.

Background & objectives Endometriosis, a chronic inflammatory condition, affects approximately 10 per cent of reproductive-age women in India. This study aimed to explore the experiences of women with endometriosis and …

Published: Jan. 12, 2026, midnight
Patient-centered priorities in endometriosis and chronic pelvic pain: A mixed-methods and thematic analysis of intake narratives.

Understanding what patients prioritize when seeking care for endometriosis and chronic pelvic pain (CPP) is crucial for delivering personalized, responsive care. However, patient-defined goals remain poorly characterized across various life …

Published: Dec. 16, 2025, midnight
How Women with Endometriosis Use Social Media for Support and Self-Management: An Analysis of Reddit Content.

Women with endometriosis often experience insufficient knowledge and support regarding their condition within the healthcare system. Women use social media to obtain information, share personal experiences, and establish connections with …

Published: Nov. 11, 2025, midnight
Exploring endometriosis community needs to co-create the EndoZone digital health platform: a qualitative research study.

Endometriosis is a chronic inflammatory condition that is associated with painful periods and a variety of co-morbid symptoms for 10% of women and people presumed female at birth globally and …

Published: Nov. 10, 2025, midnight
Insights from focus groups with trans and gender-diverse people with endometriosis: stories you tell, stories you don't.

Endometriosis is a chronic condition characterised by cyclic pain symptoms that often significantly affect health-related quality of life. Predominantly framed as a "woman's condition," current research overlooks the experiences of …

Published: Sept. 17, 2025, midnight
A Template Thematic Analysis of Self-Concept and Self-Compassion in People Living With Endometriosis: Analysis of Qualitative Survey Responses.

To explore the influence of endometriosis on an individual's self-concept and the potential applicability of self-compassion in addressing alterations to self-concept.

Published: Dec. 1, 2024, midnight
Self-Management Among People Living With Endometriosis: A Qualitative Study.

Self-management is pivotal for effective chronic disease management. However, this concept remains unexplored among people with endometriosis, who often experience chronic pain and significant impacts on their quality of life. …

Published: Nov. 14, 2024, midnight
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